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Johnny Kennedy on C4

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Wanderer:
I'd seen it before but did anyone else see the program with Johnny Kennedy. The boy who's skin fell off.

It was absolutely stunning and did make oi cry near the end. It made it into the top 50 best documentaries but I reckon it was the best.

The things he'd do to get a cuddle from nell McAndrew. No one could blame him.

He was a real star and his charity has earned over 1/2 million pounds for Eb sufferers.

Gary:
Absolutely Blown away by him last night.

His Bravery was astonishing, I felt very humbled watching his life story.

Words can't describe the emotions that I felt.

gary

TimM:

--- Quote from: "Wanderer" ---He was a real star and his charity has earned over 1/2 million pounds for Eb sufferers.
--- End quote ---


Sorry, missed the program, so can I ask a stupid question.....

Whats Eb ?

Wanderer:
Quick cut and paste.

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

HTH

jalopy joe:
Puts our daily moans and groans into perspective doesn`t it :oops:  :oops:

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